Life can sometimes be difficult..

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Life can be crazy and sometimes unpredictable.  Life cannot always be easy and at some points can even make you struggle. 

Life events cannot be predicted and you often cannot prepare.   

Like everyone, I have had my fair share of struggles.  In my last blog post about Pain, I touched briefly on the changes I have made to my life.  I have slowed my life down, taken a step back, actually maybe even a couple of steps.  I have needed these steps.  Life quickly becomes full and everything demands time, at any given moment, there is always something to be taken care of.


The steps back I have taken, have ensured self preservation, my own human survival mode.  My condition often leaves me physically exhausted.  Emotionally and mentally I also struggle when I am not well.  During these cycles of Illness (which with the Plasmapheresis every fourth week are nowhere near as frequent), I do whatever is needed to remain focused, I know at these points I lack energy and I know there is only so much energy to go around and I focus this energy on keeping me up straight, I manage as best I can.  


I always re-evaluate what is important to me at these times, this re-evaluation helps me to keep focused on where my energy needs to be.  Determining my focus helps me realize where my energy needs to be.  

During my hard times, I always have my wife.  Our relationship is 20yrs into the making.  My wife is my person, she helps me, cares for me, loves me.  My wife is the reason I am still here.  Aside from my wife, I have Daniel.  Daniel also holds me up and gives me a soft landing space.  He supports me and we can talk about anything and everything.  

I have people, people I can lean on, people who support me.  People that know what to say and when.  I am not great at making friends, believe it or not for someone who loves talking, I like to stay private.   

Going through shit guarantees a change in my life’s rhythm.  Changes happen as one part of my life ends and another begins.  My heart and my mind evolves from the changes I experience.  The past 8-9 years have shaken me up and thrown me out a changed person and I see life differently. 

I trust my life will be good in time, meanwhile I will take all the time I need. 




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