Snapshot of my condition





Neuromuscular disorders like mine can affect the nerves that control your voluntary muscles.
Voluntary muscles are the ones that I can control, like in my arms and legs. My nerve cells, called neurons, send the messages that control these muscles. When the neurons become unhealthy or die, communication between my nervous system and muscles breaks down. As a result, my muscles weaken and in some other conditions muscles can waste away.





The muscle weakness for me has lead to twitching, cramps, aches, pains, joint and movement problems.  I suffer from hyperexcitability, I have continuous firing of my peripheral nerve axons which in turn activate my muscles fibers.  Symptoms for me include muscle stiffness, continual contracting and twitching muscles, never ending cramps, increased sweating which is bloody awful at night and delayed muscle relaxation which occurs even when I am asleep.
The muscle pain from my condition is horrendous hence the high level morphine. 
Neuromuscular diseases are often genetic, which means they run in families or there is a gene mutation. 
Certain conditions are hereditary and acquired (occurring from unknown causes), my condition is made up of both hereditary cases and acquired cases.
The acquired form of my condition occasionally develops in association with peripheral neuropathies or after radiation treatment, but more often is caused by an autoimmune condition.
The goal of treatment for me is to improve my symptoms, increase my mobility and lengthen my life.

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